AFO Leg Braces

Today Eli got his AFO's! They are so cute. We have been waiting on these things since like the end of March. Everything looks like it fits good and he is tolerating them pretty well at this point. They gave us a wearing schedule to follow for the next 7 days. After 7 days he should be able to wear them all the time unless he is asleep. I'm also suppose to look out for any redness or anything unusual over the next 7 days. If I see something I have to call and make an appointment for them to make some adjustments to the braces.

We have been so busy the last few weeks. We have been to Houston twice and Dallas once. Today we had the appointment to pick up the AFO's and then we had a pediatrician appointment because Eli's oxygen saturation has been lower than normal. The pediatrician sent Eli for a chest x ray and to have a blood draw to check his blood gases. I was a little nervous after they got the blood gas results. The lady who did it called the pediatrician and was telling them all the numbers from the blood draw and said they needed to know what to do because the numbers were critical stats. I really thought they were going to admit him to the hospital or something. Thankfully because we have oxygen at the house they gave us our instructions and sent us on our way. They are saying he has a lung infection. They put him on antibiotics, nebulizer treatments every 4 hours and oxygen 24 hours a day. Hopefully this is just a lung infection and not his tumor trying to cause any more issues.