Eli has been doing really well. They have worked him up to almost 4 ounces an hour on his feeds, which is amazing for him. Other then that all Eli really has to do all day is play and watch his movies.
My husband Floyd is down this weekend so we can take all our classes and go home. Today we did our trach care class and had to change the trach ourselves. It didn't go well at all. I changed the trach first and it was hard to put in and once it was in it was bleeding a little. Then when Floyd tried to put his in he couldn't get it to go in. The nurse had to start bagging him and we had to get a smaller sized trach. Then the doctors and ENT came in and checked him and scoped the trach to make sure everything was okay. No one really knows what happened or why the trach decided to not fit. We just hope that every trach change, which is once a month, isn't like this one.
Floyd and I are currently doing our 24 hour room in. This just means that for 24 hours we do everything ourselves. We get the medicine when it is suppose to be given. We ask for the milk and set up the pump for all the feeds. Then of course just his every day needs like diaper, bath and anything else he needs is our responsability.
We are all so ready to go home and just start this. It's getting old being at the hospital.
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